The template helps patients structure symptoms for AI queries
I’m an AI researcher turned brain tumor patient, and recently I used the models to crack my mystery fatigue faster than my PCP could. I believe everyone can do the same with their own symptoms. Here’s how:
Many users praised the AI researcher's story of using models to diagnose her own fatigue faster than a doctor, calling the work incredibly inspiring and impactful for AI in healthcare.
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I also packaged my process into a plug-and-play skill for Codex / Claude Code and a portable system prompt for the less technical (GitHub link in the article's Appendix).
This is not medical advice. Every medical decision I made was under a physician's guidance. Read more about my case and the practical playbook here: https://metalearn.substack.com/p/i-solved-my-mystery-fatigue-with-ai
So I data-maxed on my illness. For weeks, I tracked a dozen metrics the models flagged as possible causes, ran comprehensive blood work plus specialized panels, and had the models analyze it all and suggest experiments.
I’m an AI researcher turned brain tumor patient, and recently I used the models to crack my mystery fatigue faster than my PCP could. I believe everyone can do the same with their own symptoms. Here’s how:
Then I kept tracking and iterating until my energy held. The culprit turned out to be a mix of under-fueling on carbs, ferritin deficiency, estrogen irregularity, and medication dosing—something a PCP could take months or years to untangle, if ever.
Now that I'm better, I want to help. - Scientists/physicians: I can help you make better use of AI. - Patients: I can teach you to research your condition better. - AI researchers: I have thoughts on model behavior gaps. Grab my time here: https://calendar.app.google/Psc3DGJ8iiZqL5pu5
I want to empower people to take on their own health problems with AI. I believe the missing link isn’t model capabilities but rather the awareness that you can already do this + the AI literacy to use the models well.
Many people still use models like Google for health: they vaguely describe symptoms with no real context. But diagnostics is all about knowing where to look for evidence hiding in plain sight.
AGI won't make AI literacy obsolete the way it might make prompt engineering obsolete. Health is irreducibly human. My process essentially turned my symptoms into a long-horizon verifiable task, except my body is the environment, the reward function, and the executor.
Thank you @jjanezhang, Rahul, Luke, Eli, and @andrewjrod for thoughts and inspirations :)
@amydeng_ Makes absolute sense. LLMs connecting dots in seconds vs a rushed 15-min visit? No contest. How long before you got proper treatment?
@amydeng_ wow, absolutely incredible
@amydeng_ Just incredible what you’ve done and generosity to share with others! AI for Healthcare is real and one of the most impactful shifts happening right now
@amydeng_ this is awesome, thank you for sharing!
@amydeng_ Thank you for sharing your story and your knowledge with all of us Amy!!
@amydeng_ this is one of the most amazing posts on this platform i've seen in a long time. there are multiple people close to me who'd benefit greatly from your work, will be sharing this & thank you!
Wow, in 4 hours, all my 16 meeting slots are gone. I just opened up a dozen more. Thank you to everyone who reached out - you're giving my suffering a purpose!
@amydeng_ I’m glad you figured it out! I just got a new doc for my fatigue after it was clear the last one was out of ideas. I’ve never been so excited to get lab results back.
@amydeng_ incredible work amy, so proud of you 😎
@amydeng_ So important!
